WHEREAS, CDKL5 Canada was incorporated as a non-profit charitable organization in 2012; and
WHEREAS, Deficiency Disorder is a rare genetic disorder that impacts approximately 1 in 60,000 births, with early onset intractable epilepsy and neurodevelopmental delay, impacting cognitive, motor, speech, and visual function, and
WHEREAS, The organization is operated by a volunteer Board of Directors who collaborate with other CDKL5 organizations around the world to advocate for patient families, provide support to families, fundraise, create awareness, and invest in innovative scientific research to advance treatments and ultimately find a cure; and
WHEREAS, June is celebrated globally as CDKL5 Awareness Month, and proclamations and illuminations in support of CDKL5 Canada are seen by families around the world, they provide hope and remind them that they are not alone; and
WHEREAS, All monies raised by CDKL5 Canada are invested with Canadian researchers and shine a spotlight on our scientific academia.
NOW THEREFORE, I, Yvonne Hamlin, Mayor of the Town of Collingwood,
DO HEREBY PROCLAIM June 2024 as CDKL5 Awareness Month in the Town of Collingwood.
Dated this 17th day of June, 2024