WHEREAS The Canadian Association for Porphyria a non-profit organization was founded in 2014 by a small group of volunteer patients, caregivers and their friends to provide Canadians with porphyria-related information, understanding and support; and
WHEREAS The current Canadian Association for Porphyria has built upon the legacy of two earlier organizations which served Canadians for more than two decades: Canadian Porphyria Foundation/Canadian Association for Porphyria, Inc, (1988–2011) & Alberta Porphyria Society (2011–2014); and
WHEREAS We deliver evidence-based information and support to patients with porphyria, their families, health care providers and the general public across Canada; and
WHEREAS We help achieve standards and evidence-based comprehensive care for all people with porphyria throughout their lifespans; and
WHEREAS Porphyria is a family of rare disorders related to the way your body makes an important molecule called heme. Some types of porphyria can cause attacks with severe abdominal pain, nausea, and paralysis. Other types cause intense pain, burning or blistering when skin is exposed to sun and some indoor lights. It can take years, sometimes decades to get a diagnosis; and
WHEREAS On May 18th, 2024, we are illuminating the globe purple to raise awareness for Global Porphyria Awareness Day. We will be joining our friends around the world to raise awareness of porphyria and advocate for greater access to diagnosis and treatment.
NOW THEREFORE, I, Yvonne Hamlin, Mayor of the Town of Collingwood,
DO HEREBY PROCLAIM May 18th as “Global Porphyria Awareness Day” in the Town of Collingwood.
Dated this 18th day of May, 2024